Hands of Hope Pediatric Care

Through compassionate care, we provide support for the physical, emotional, and spiritual needs of children and their families.

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Caring for Children Is Our Calling

Who We Are

Hands of Hope is South Carolina’s only statewide palliative and hospice provider with a dedicated pediatric team. We offer two home-based lines of service tailored to support the physical, emotional, and spiritual needs of the child and family managing a life-threatening illness. Our team provides resources and education to assist families in making informed decisions regarding the child’s care and quality of life. Services are available to any child living in South Carolina.

Our providers work closely with the referring medical provider to determine if palliative care or concurrent care hospice is the most appropriate service line for each child. Our unique model of care provides services that seek to prevent and relieve suffering, ensuring the highest possible quality of life. This support allows comfort and security to focus on what matters most to the child and family.

Customized Pediatric Care

Palliative Care

Pediatric palliative care is specialized medical care provided to children who are living with a life-threatening condition or a life-limiting illness. Palliative care is family-centered and focuses on discussing goals of care, symptom management, and offering support through the patient’s illness.

How we support our patients

With palliative care,
you and your child can expect:

Scheduled visits with a medical provider

Nurse case management assistance for coordination of care and services

Consultation with a dietitian, chaplain, and medical social worker as needed

Recommendations to your child’s medical providers to enhance his/her quality of life

Your Palliative Care Team

Medical Director
Medical Director
Medical Director

A concurrent care hospice and palliative care physician who also has training in pediatrics. Offers insight into the management of symptoms and guides the team in understanding the medical aspects of the child’s condition.

Palliative Care Nurse Practitioner
Palliative Care Nurse Practitioner
Palliative Care Nurse Practitioner

Provides home visits and makes recommendations for managing symptoms and for caring for the entire family.

Palliative Care Nurse Case Manager
Palliative Care Nurse Case Manager
Palliative Care Nurse Case Manager

Knowledgeable about resources within the hospital and community. Experienced in working with agencies providing children with equipment and therapies.

Resources, Education & Comfort

Concurrent Care Hospice

Under the Affordable Care Act, children with life-limiting illnesses can receive both curative and hospice care. This is called concurrent care. Concurrent care hospice allows pediatric patients, between birth and 21 years of age, to continue curative treatments alongside hospice services in efforts to assist patients in reaching goals of care while staying as comfortable as possible. Hands of Hope offers in-home support services while your child continues to receive all care from the current medical team.

With concurrent care
hospice, you and your
child can expect:

Scheduled visits with a medical provider and 24/7 physician on-call coverage

Nurse case management assistance for coordination of care

Skilled nursing visits

Social work, chaplain, child life, and dietitian services

Multidisciplinary bereavement services

Your Care Team (Concurrent)

Physician
Physician
Physician

A pediatrician with additional training and experience in hospice and palliative care. Offers insight into the management of symptoms and guides the team in understanding the medical aspects of the child’s condition.

Nurse Practitioner
Nurse Practitioner
Nurse Practitioner

Provide home visits, manage symptoms, discuss goals of care, provide support for educational planning, and ensure families are connected with community resources.

Child Life Specialist
Child Life
Specialist
Child Life Specialist

Help children and their families overcome life’s most challenging events by utilizing play, preparation, education, and self-expressive activities to promote coping.

Nurse Case Manager
Nurse Case
Manager
Nurse Case Manager

A team of pediatric trained registered nurses who provide hands-on care or treatment to meet the needs of a child.

Chaplain
Chaplain
Chaplain

Provides nondenominational spiritual care based on the individual faith or spirituality of the patient or family.

Pediatric Medical Social Worker
Pediatric Medical
Social Worker
Pediatric Medical
Social Worker

Helps make decisions about available care options, provides support as you cope with your child’s illness, identifies available resource referrals, and assists with other emotional needs.

Nutritionist/Dietitian
Nutritionist
/Dietitian
Nutritionist
/Dietitian

Works with physicians to alter a child’s nutrition based upon their medical condition and individual needs.

Philosophy of Care

Palliative care and hospice are specialties that provide care through comfort and support for patients and families facing complex or advanced illness. These services affirm life and neither hasten nor postpone death. Quality care is provided for pediatric patients from birth to 21 years of age and their families without regard to gender, nationality, race, creed, sexual orientation, or disability.

Refer a Patient

Hands of Hope is South Carolina’s only statewide palliative and concurrent care hospice provider with a dedicated pediatric team. We offer two lines of service tailored to support the physical, emotional, and spiritual needs of the child and family. Our providers work closely with you and your team to determine if palliative or concurrent care hospice is most appropriate for your patient.

Refer

A Special Experience

Camp Hands of Hope

Funded and operated by the Hospice & Palliative Care Foundation, Camp Hands of Hope is a program for South Carolina youth and their families who have experienced the loss of a loved one in the past three years. It’s a safe, welcoming environment for processing grief, learning to cope with feelings, and making new memories.

Learn More

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